Wednesday, July 02, 2008

Edna Knight, MBE!

From a parent support newsletter I got this morning by email:
We are thrilled to announce that Unique Founder & Life President Edna Knight has been made an MBE in the Birthday Honours List 2008. Having founded the group in 1984 with 5 families, Edna has been a major driving force in its development. The award is for voluntary services to people with a chromosome disorder and their families. Congratulations Edna on a richly deserved award.
I joined UNIQUE when my son was just a year old--because he has a rare chromosome disorder, and way back then (I mean 1996), there were no online discussion boards or blogs or listservs for families to meet each other and learn from each other. At the time, UNIQUE didn't have a way of collecting subscription fees in US dollars, so they just sent me the newsletter for free, for years. It was something amazing at the time, to see the founder's letter on the front page, and discover that she had raised two daughters with rare chromosome disorders (and two without, as well)--they were all adults by the time I subscribed, and just finding that they were living and thriving young women was a huge encouragement when I was first starting out. UNIQUE expanded my understanding of what was possible, and what was happening in the world, when I might otherwise have felt very isolated and fearful. So congratulations, Edna Knight!

6 comments:

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Wow, sounds like a great organization, especially to send the free newsletter before the internet was as big as it is. Nice reading.

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