Showing posts with label cerebral palsy. Show all posts
Showing posts with label cerebral palsy. Show all posts

Friday, July 18, 2008

July 18: Hermann of Reichenau (1013-1054)

[Image description: A painting showing a brown robbed monk, Hermann, holding a crutch in one hand and a book in the other, with a harp nearby, and the words "Salve Regina," the name of his best known composition; found here]

Maybe some of the fine medievalists blogging about disability history can help with this one: I saw reference to Hermann von Reichenau's birthday today (the Catholic Encyclopedia gives the date as 18 February instead; still, five years till his 1000th!). The son of a nobleman, he didn't walk, and was hard to understand when he spoke, so the assumption is usually that he had CP or something similar. He was called "Hermann der Lahme," or "Hermannus Contractus" or Hermann the Lame, Hermann the Twisted. At age 7 Hermann entered the monastery at Reichenau. There, he became an expert on Arabic mathematics and astronomy, composed hymns and poetry, and wrote historical chronicles and treatises on music theory and math games. He seems to have introduced the astrolabe to central Europe, among his other accomplishments.

The relics on display here seem to include part of Hermann's skull? Am I seeing that right?

While I'm on the subject of cloisters, I recently read Mark Salzman's Lying Awake (Vintage 2001), a short novel about a cloistered nun in 1990s California who's diagnosed with temporal lobe epilepsy. But Sister John, a published poet, experiences her seizures as ecstatic spiritual revelations, and isn't sure she wants to lose that by having the recommended neurosurgery. The story follows her decision-making, the conversations she has with doctors and priests and her sisters in the community. It's thought-provoking, because the life of a woman religious involves vows and habits of selflessness that affect her criteria for deciding about medical treatment. (If the author's name rings a bell, Mark Salzman is married to filmmaker Jessica Yu, who won the Academy Award for her 1996 short-subject documentary Breathing Lessons--about Berkeley poet Mark O'Brien, who used an iron lung.)

Sunday, December 30, 2007

Definitely living!

smiling child[Image description: Smiling blond boy in a zip-up hoodie, sitting in a cylindrical playground structure made from red mesh.]

Jacqui at Terrible Palsy says, "You all know how much I hate the media portraying a person as suffering from cerebral palsy. So I was thinking to myself - how come they can’t say that a person is living with cerebral palsy." She follows this with some joyous recent photos of her kids--definitely living, not suffering! I'll follow suit. Here's my boy Jake, at left, not suffering at all, at our favorite park last spring (cerebral palsy isn't his primary diagnosis, but it's one of the many boxes we check on his medical forms).

Friday, September 16, 2005

The Voices

While clicking around the excellent The Voices Recordings map at the BBC site, I lucked onto the dot over Edinburgh. Each dot on the map leads to a page of sound files of people conversing in that place--so you hear Scots women in Ayrshire talking about shoes, or a family of Kentish fishermen talking about the weather, that kind of thing. They're usually talking about language, whether it's quirks of local vocabulary or accents or the power of certain epithets. Anyway, the Edinburgh dot brings you to a page with five sound files of three actors with cerebral palsy, discussing disability terminology and disability culture. James McSharry, Robyn Hunt, and Malawi Logan are the wonderfully candid, articulate, and frank participants--if you get a chance, have a listen. On childhood taunts, for example, McSharry says, "Somewhere along the line, that language creates a stereotype that it's ok to throw a stone at me."