Showing posts with label California. Show all posts
Showing posts with label California. Show all posts

Monday, June 23, 2008

"Reflections On the Physical and Moral Condition of the Blind (1825)"

This sounds like an interesting evening; if you're in the Bay Area, check it out (and report back!). From H-Disability (links added):

The Holman Society Presents

Selected Reflections On the Physical and Moral Condition of the Blind (1825):
A Conversation and Performance

Written By Therese-Adele Husson
Introduced by Catherine J. Kudlick
Performed by Carrie Paff

Friday, June 27th, 2008 at 8:00 PM
The East Bay Center for the Blind
2928 Adeline St in Berkeley
$5-20 sliding scale at the door
No one turned away for lack of funds.

The Holman Society invites you to a live performance of selected passages
from Reflections: Writings of a Young Blind Woman in Post-Revolutionary France (NYU Press 2001). This brief yet surprisingly expansive treatise on blindness was probably dictated in desperation to one or more sighted scribes in the early nineteenth-Century French equivalent of a renter's résumé, only to be rejected, set aside, and lost for almost two-hundred years. The blind author's first-hand observations about blind people and their social status, rules for marriage, prospects for romance, and appropriate pedagogical approaches paint a portrait of a bygone place and time with hauntingly familiar themes which remain with us to this day. The style is 100% over-the-top, unedited nineteenth century, translated French hyperbole, with all of the linguistic curlicues and semantic serifs one could possibly wish for. Blind women are referred to as "female companions of misfortune," and chapters have titles such as "On the Inflection of a Sweet Voice on the Heart and Senses of a Blind Person." Nevertheless, an amazing amount of what she has to say strikes strong resonant chords in today's blind world. Even when her observations seem antique or deliberately demure, her writing raises deep questions as to why her experience was what it was, and why ours is what it is (or isn't).

We welcome Carrie Paff - a treasure of stage and screen - who will read for us, and Professor Catherine J. Kudlick - the manuscript's re-discoverer and translator - who will help us to place Adele Husson in her proper historical context.

The relaxed wine and cheese reception following the presentation will be an
extraordinary opportunity for open discussion and exchange of ideas. We
anticipate attendees from a rich maelstrom of interlocking backgrounds
including disability and gender studies, history, disability rights,
rehabilitation and rehabilitation engineering, and of course the Holman
Society and broader Bay Area blind community.

This event promises to be thoroughly entertaining and thought-provoking,
and follows in the informal, yet deeply stimulating tradition of the Holman
Society. We hope you will attend.

Monday, June 02, 2008

Chess Lesson in the Park

[Photo description: In a grassy park on a sunny day, shaded by trees, a man in an orange shirt is teaching a chess lesson to a small group of children--other adults and children are standing nearby.]

All the best things happen at the accessible playground, right? Saturday at Aidan's Place in Westwood, young volunteers from Chess Tutors (a division of People Making Progress) were there to teach a free basic lesson to anyone who would listen, of any age or ability. (My son is the fluffy-haired kid on the hip of one of the tutors, Neisha, at left. I think she's Neisha Ellington, who is also a local unsigned hip-hop artist. She danced him through the songs.)

They taught some of the history of chess and rap-like chants, some of them in Spanish, to remember how to set up the board, what each piece can do, all that. It's hard to see, but they brought a large-scale chess set for demonstrating--each piece is about the same height as a seated child, but light enough for a child to lift or push into place; and a hanging banner showing the chessboard, with clear pockets for moving the pieces (on cards) around. They did a nice job with making chess interesting, using various media and models, to meet a very diverse group of kids wherever they were.

Wednesday, May 07, 2008

May 8: Douglas A. Martin (1947-2003)

May 8 was the birthday of Douglas A. Martin, a leader of the disability rights movement in Los Angeles in the early 1970s, active in Californians for Strong Access, and co-founder and director of the Westside Center for Independent Living in 1975. In 1971, he was the first grad student with a "significant disability" to win a UCLA Chancellor's Fellowship--and the next year he was UCLA's first disabled teaching assistant. He earned a PhD in urban studies at UCLA. Martin co-founded the Chancellor's Advisory Committee on Disability in 1983, and was a Special Assistant to the Chancellor to coordinate ADA and 504 compliance on campus. On the national level, he lobbied tirelessly to remove work penalties from Social Security provisions. Martin died way too soon, in 2003, at age 55.

There's a really good, long, interesting oral history interview with Douglas Martin, conducted in 2002 by Sharon Bonney, available in transcript at the Bancroft Library website. (There are also audio and video clips. This might be limited access, I'm not sure.) One section that particularly caught my eye was about his three years in an Omaha hospital after contracting polio at age 5; television was new then, and a great distraction for a ward full of children in iron lungs. But the Army-McCarthy hearings were running on the only channel for much of the day! Martin remembers that planting a seed:

It just really gave me a sense of, there's a whole big wide world out there going on, and you know this political world and all this stuff. It was interesting. Didn't have that much to do with it at that point except take it all in. But later I guess, it might have been part of the reason I was interested in politics, and getting involved in Washington, and kind of having knowledge. There was so much information and detail about the system, and how it worked and how it didn't work, in those days. Some of the best and some of the worst in people in politics came out. It was fascinating, and I guess I got interested, I saw it to be a place where you could make a difference. I kind of filed it away in the back of my mind. I kind of remember that as possibly motivating, as some basis for later interest in trying to bring about social change, something more positive. (here)

I don't watch TV if I can help it when I'm in the hospital. When my kid is hospitalized, it's usually in a shared room, and there's little choice. I remember being in a quad isolation room with him during the 1998 Clinton impeachment hearings; the mother across the room was shouting at the commentators a lot. Think I also saw an Olympics opening festivities in a PICU once? I know another mother whose son was born in July 1969--so she and the other women giving birth that week were among the Americans who did not see the Neil Armstrong moon landing live.

What have you seen--or not seen--on TV during hospital stays?

Monday, May 05, 2008

RIP: Harlan Hahn (1939-2008)

Just saw the news that Harlan Hahn, a political science professor formerly at USC, a disability rights activist, and an important figure in the founding and development of disability studies in policy research, has died at the age of 68. Some of Harlan Hahn's online writings:

"Toward a Politics of Disability: Definitions, Disciplines, and Policies"
"Good Jobs, Good Benefits (but not for disabled workers)" at Ragged Edge (2006)
"Love, Sex, and Disability: Maintaining Interest and Intimacy" (transcript of a conference appearance with Sharon Bacharach)

ADDED LATER: Beth Haller has this remembrance.

This is for Kay at Gimp Parade


[Photo description: Signage outside a men's room shows two beige plaques--one, a symbol dressed in Western gear labeled "Men," and the other below is the usual access symbol; both are posted on a stone surface]

Disabled guy doesn't get a hat, neckerchief, chaps or boots, either.... spotted at Knott's Berry Farm last fall.

(There's an equivalent sign on the ladies' room, photo posted here.)

Thursday, December 20, 2007

Marty Omoto, "Remembering the Past"

This is a new commentary by Marty Omoto, director/organizer of the California Disability Community Action Network (CDCAN). I've mentioned before how valuable the frequent email newsletters from CDCAN are; Omoto's personal commentaries are less frequent, but also well worth a read--and because this one is about disability history, I'm even more inclined to share it. (I added links where appropriate.) His email says "It's okay to forward this, just provide attribution." Thanks, Marty! Keep up the great work.-- PLR

REMEMBERING THE PAST: A LESSON IN ADVOCACY
by Marty Omoto (December 2007)

Recently, the remains of about 40 children and adults with disabilities and other special needs, originally buried in unmarked graves during the late 1890's on the grounds of the now-closed Stockton State Hospital (45 miles south of Sacramento) were reburied. They were among the estimated 25,000 children and adults with developmental disabilities and people with mental health needs who lived and died in California's state hospitals between the mid-1880's and 1965.

During that time period, those 40 children and adults in Stockton, like the thousands of others buried in other places at that state facility and other state hospitals, were considered "invisible" members of society and ignored by the rest of the world even when they lived. Those without families to claim their bodies when they died, were often put into unmarked graves and were forgotten as quickly as the last shovel of dirt that covered them.

The California Memorial Project, a collaboration of people with mental health needs, people with developmental disabilities and other advocates, along with state and local agencies, helped to identify those persons forgotten and buried, and to remember them with the respect and honor that they never received in life.

Dick Jacobs, executive director of Valley Mountain Regional Center, observed that recent reburial in Stockton and recalled that during the original excavation of the unmarked graves "...One of the crew reportedly wept openly while exposing the remains of a little girl who was apparently buried with nothing other than the plain shift that 'inmates' wore in those days. Perhaps he was hoping to find the remains of a doll, I don't know."

Remembering the past is always linked to how we live in the present and view our future. The California Memorial Project, like other efforts to remember the past, is also about honoring those who died, and respecting people now. That is something important for all of us to understand, not just in the disability community, but also for policymakers and others in our State and nation.

It also has some important lessons to teach us as advocates and policymakers in the coming months, whether in health care reform or how the State responds to a budget crisis that grows worse each month.

Remembering the Good Things and the Bad
Certainly remembering the past means remembering the good things this country has done and the progress it has made in human rights. Certainly there is much for all of us to be proud of. There is no better country, and no better ideals as expressed in the Constitution than the United States of America.

But the California Memorial Project and other efforts, including remembering the Holocaust or the internment of Japanese-Americans during World War II and other terrible chapters in our past, is important because it also reminds us how often our country has badly treated people because of differences in color, because of disabilities, gender, age, because of mental health needs, because of sexual orientation, because of income status or what other country they immigrated from.

Yes, our country has changed dramatically since that time in Stockton over a century ago, and will continue to change. Hopefully the good changes will outweigh the bad, or at least correct the bad things of the past.

But there are bad things happening now - and bad things that many fear will happen in the coming months.

Another Important Reason to Remember the Past
George Santayana once wrote that "Those who cannot remember the past are condemned to repeat it."

So there is another important reason to remember.

It is important for us to also remember that the rest of the world, and the rest of the country during that time and times more recent, claimed it "did not know". Some people during that time were simply indifferent, because they did not care or had other important things to worry about.

We need to remember that indifference, not hate, as Elie Weisel once wrote, is the opposite of love because it is often more destructive, more insidious and more shameful. Indifference means that good people stand by and do nothing to stop an injustice, to correct a wrong or to cry out for help while another is being hurt.

Indifference is the silence that lies, it is the trust in things that betrays our values. It is the evil that stands by and allows shameful and bad things to happen, whether 100 years ago, or 50 years ago, or here and now.

Less than a half century ago, many people thought it was okay to isolate people who were different either through poverty, because of disabilities or mental health needs or color. Even more people would have claimed they did not know or through indifference claimed they did not see.

They did.

Now, over some 50 to 100 years later , how does that past - and the subsequent things that have happened - matter to us beyond simply remembering the people who died and were treated so shamefully? Or are we condemned to repeat the same mistake again?

Lessons in Advocacy In Remembering Our Past
Frederick Douglass once wrote that "when poverty is enforced, when justice is denied, when anyone feels that government is an organized conspiracy to rob, or oppress them, then no one, no property is safe...."

So the lesson for us to learn in remembering, which is a constant part of our never ending training in advocacy, is that when people are treated as non-entities or not deserving, if a people are looked on as invisible or powerless, then bad things are almost certain to happen to them.

To us.

And yet because we are one community - whether we believe it or not - when that happens, the whole nation, the whole world is degraded. To really honor those who died over a century ago. for those who died more recently up to 1965 in those state hospitals, cast into graves without dignity or respect, means that we need to also remember that decisions on policy that allowed those things to happen, were made by those who "show up" and were allowed to also happen by the people who didn't.

"Showing up" means not just a physical presence, it means that all of us - our families, our friends, our neighbors and co-workers need to "show up" and take action. It means not being silent and not being indifferent.

Now it is December of 2007 and California now faces a $14 billion shortfall that is certain to be addressed by policymakers by massive budget cuts and reductions.

And what is also certain is that pretty bad things will be proposed that impact children, adults and seniors who live in what I have called the "Other California" - people with disabilities, seniors, people with mental health needs, children and families and workers who are poor.

Many good policymakers - and many other Californians - will allow bad and shameful things to happen and claim indifference or that they did not know.

They do.

In reconciling our past with the reburial of 40 children and adults with disabilities, with mental health needs who were shamefully disposed of in unmarked graves means to remember and honor them and others who died and were cast out 50 to 100 years ago by remembering that we must not be invisible. It means that we must remember that we are all part of the same community and to remind others of that right.

It means that we need to also remind ourselves that decisions are made by those who show up. It means that we must teach ourselves that if we truly believe in inclusion and self determination then we must also believe we have the power and responsibility to create change, to protect our friends and families, and to remind the world - and perhaps most importantly ourselves, that a life matters .

Decisions are made by those who show up, who are not invisible, who by their very presence demand to be noticed, to be a part of what happens in their life in every possible way. It means to be respected and to bring down the comforting veil of indifference that divides and separates us from the rest of California and our nation.

If we do that, we will be honoring those who have died in those state hospitals in unmarked graves that an indifferent world wanted to forget and we will be respecting the lives they had lived by "showing up" and insisting that the world respect ours.

Monday, November 19, 2007

Public service announcement

Just in case Julia Roberts reads our blog (ha!).

This is (below, left) an Academy Award: ....... and this (below, right) is a parking placard:

They're not interchangeable. Not even in Los Angeles. (Correction: Malibu.)

Any questions?

Wednesday, October 24, 2007

Where There's Smoke

Although the name of the blog is Disability Studies, Temple U., and Temple U. is in Philadelphia, you can learn from the sidebar that I'm not--I'm in Southern California. Redondo Beach is nowhere near any of the wildfires in the news, and we're not in any danger of evacuation or road closings here. But...

We're seeing ashfall. It's not Pompeii after the eruption of Vesuvius, but cars parked outside get a fine dusting. And if you look closely, there are ash particles floating around in the air everywhere. That means there must also be smaller-than-visible particles in every breath. Our Air Quality Index on the coast today is at U--U for "unhealthy." (There are actually two worse designations: V, for "very unhealthy," and H, for "hazardous.") Schools are advised to cancel outdoor physical activities. People are rubbing their eyes on every corner. Throats burn, and we're all coughing a lot. I'm keeping my little-used inhaler handy.

For most folks, it's a minor, temporary problem, and they're grateful that's all we're getting here. But for people with existing heart, lung, or other health conditions; for people whose jobs have them working outdoors all day; and for older people and little kids, this can be a serious, even life-threatening matter. So when you see the satellite images of the smoke plumes, or hear about how many square miles are burned, remember that a much wider area is affected by these events in less dramatic ways (no good television footage to gain from asthmatic gasping, or kids sitting indoors instead of having recess). And disabled people are often feeling it more than most.

Sunday, September 09, 2007

Yes, it can happen. It does happen.

If you've seen stories like Ruben Navarro's, and thought, "thank goodness, that can't happen to me or my loved ones, because we have each other, some of us have medical training, we know our rights, we've made legal provisions..." --whatever you thought protected you and yours from being fatally mistreated in a hospital setting, read today's investigative report in the LA Times about the death of Linda Sue Brown. Lies were told, consent forms were forged, care was withheld, surgery (a hysterectomy) was performed on a disabled woman without appropriate consent and possibly without clear medical necessity. And nobody has been held accountable under the law.

Two of her sisters were once nurses at the hospital where Linda Sue Brown died. One of them has recently persuaded the state medical board to reopen a closed investigation of the circumstances surrounding Brown's death.

It can happen, and it does happen. A stronger system to protect and enforce disabled patients' rights is crucial in medical settings, because all the informal measures (a loving and informed family, nonbinding guidelines and suggested protocols, basic human decency) aren't always enough. And when those rights are violated, there have to be real consequences.

Thursday, August 23, 2007

Patronizing typography?

Type well used is invisible as type, just as the perfect talking voice is the unnoticed vehicle of the transmission of words and ideas.--Beatrice Warde (1900-1969)
Warde's declaration above is from her 1930 lecture, "The Crystal Goblet, or Printing Should be Invisible," and it's saying something that every undergraduate in graphic design is taught: the best font is the one you don't notice.

Well, I noticed. Or rather, my seven-year-old did. When a brochure came in the mail from our regional center, she assumed it was for her, because it was a booklet with bright colors and graphics, and big letters in a child-friendly typeface. Here's a sample:

Excerpt from brochure, showing scrawly typeface
[Image description: On a yellow ruled background that resembles a sheet of paper from a legal pad, there is purple scrawly text, that reads "Yes No Maybe (I would like to hear more about this)" and in the same font, in black, superimposed on a purple trapezoid, "Other Things That Are Important to Your Family."]

But we soon realized, it was for me--the parent of a regional center client--a questionnaire to complete before a routine meeting next week. Why the childish design? Our regional center's client base is diverse, sure, but every parent they serve is an adult, right? Whether you're a parent with a developmental disability, or a parent with limited literacy or English proficiency, you're still an adult. I understand why the questionnaire should use basic, clear language, but I don't see why this childish font would be used for any adult audience, at least any adult audience you wanted to treat with respect.

Wednesday, August 22, 2007

CFP: Disability History: Theory and Practice

[Straight from H-Disability; links added by me]
Disability History: Theory and Practice

San Francisco State University's Institute on Disability, the Disability History Association, and the Disability History Group of the United Kingdom invite submissions for papers to be given at a conference at San Francisco State University, 31 July-3 August 2008.

During the past two decades, research, teaching, and scholarly publication on the history of disability as a social, cultural, and political phenomenon has drawn increasing attention. The goal of this conference is to assess the state of the field. It will examine the theory and practice of disability history. And it will explore theoretical and substantive, methodological and practical strategies to promote the continued development and intellectual coherence of this field.

We invite proposals for papers on any aspect or stream of disability history. For example:

· Cultural representations.

· The histories of blind people; people with cognitive/developmental disabilities; deaf and hard-of-hearing people; people with physical or emotional disabilities.

· Any historical era.

· Any culture, society, or geographical locale.

· Ideologies and the history of ideas.

· Institutions, professions, and programs that historically have affected people with disabilities.

· Public laws and policies: civil/human rights, eugenic, rehabilitative, international.

· Social and political movements.

While this call is open-ended as to subject matter, we seek in particular historical case studies that can open up discussion of broader issues. We invite papers that use presenters' current research to consider how they approach the history of disability. What theoretical concepts inform their interpretations? What analytical and methodological tools have they found most useful? How does their work benefit from or contribute to other fields of historical inquiry, such as social history, political history, the histories of class, economic systems, gender, race, religion, sexual orientation, and so forth. If the work focuses on a specific stream of disability history, such as the history of blind people or the history of public policies regarding disabled veterans, what are its connections to and implications for other streams of disability history? How does their work draw upon the more general field of disability studies and what are its implications for disability studies?

Commentors will be asked to address these sorts of questions and to facilitate discussion of them in both breakout and plenary sessions.

We welcome proposals from scholars of every rank and status from academically based senior faculty to graduate students, as well as public historians, archivists, and other scholars.

Proposals for papers should include a title and be no longer than 300 words. Depending on the number of papers accepted, presenters will have 15-20 minutes. A curriculum vitae of no more than three US letter-sized pages must accompany the proposal.

Proposals may be submitted electronically via e-mail or fax or sent in hard copy through the postal system. Mailed proposals must include five copies of both the paper proposal and the curriculum vitae. We encourage electronic submissions to expedite decision-making and planning for both the conference organizers and would-be presenters.

The deadline for proposals submitted electronically via e-mail or fax is November 1, 2007. Proposers will be notified by December 1, 2007. Please send proposals electronically to:

Paul K. Longmore
Professor of History and
Director, Institute on Disability
San Francisco State University
longmore@sfsu.edu or
fax: 415-338-7539

San Francisco State offers a range of lodging plans that will accommodate both individuals and families. Some of them are economical and affordable for graduate students.

If you have questions, please e-mail Professor Longmore at longmore@sfsu.edu.

Friday, August 17, 2007

Back to School at Terminator Elementary...

When my daughter was a year old, we were in a playgroup with about ten mothers and their babies. This being Los Angeles County, three of the ten women had "Schwarzenegger stories," tales of working on film sets with Arnold Schwarzenegger. (I laughed. Then he became governor. Then he got reelected governor.)

Now, there will be a whole new genre of "Schwarzenegger stories" among the young families of Los Angeles, because the CHIME Elementary School in Woodland Hills, a charter school that's an internationally-recognized model program of inclusive education, is renaming itself after the Governator, as the "CHIME Institute's Arnold Schwarzenegger Elementary School."

“I am honored to have a high-quality institution like CHIME Charter Elementary named in my honor. The CHIME Institute shares my commitment to educating all children,” said Governor Schwarzenegger.

Wow. And the new school mascot will be... ? The mind boggles.

[Image above: The Governor as Conan the Barbarian, dressed in leather/fur/metal underpants and studded headband, and that's about it.]

Monday, August 06, 2007

In the News in Southern California

A comment here at DS,TU alerts us that Pedro Guzman has turned up alive in a jail in the Antelope Valley--I'm still looking for some news coverage of this development, but if it's true, it's great news. And I hope the whole strange story can be explained now, somehow.

But while I was looking for that, I noticed that the LA Times had a story yesterday about the disability community and AB 374, the assisted suicide bill recently defeated in California. It features quotes from Paul Longmore, Marilyn Golden of DREDF, Ann Guerra, and Laura Remson Mitchell (against the bill) and Alan Toy and Lloyd Levine (supporting the bill). It's a good piece; thanks to the writer, James Ricci, and all involved for presenting the issues clearly and respectfully.

UPDATE (7 August): Our commenter had the scoop--Pedro Guzman has apparently turned up alive--but it took till late this morning to find confirmation at the LA Times (thanks to Stephen Drake for the tip). Seems Guzman was found trying to return to the US (he is an American citizen) at Calexico. The ACLU is starting a press conference about Guzman's reappearance in a few minutes (1pm California time).

UPDATE (8 August): NBC 7 in San Diego has a new photo of Pedro Guzman after his return to California: "His family said he ate out of garbage cans, bathed in rivers, and was repeatedly turned away by US border agents when he tried to return to California." So, US authorities were seeing him repeatedly during this time--and nobody suspected that he was the Pedro Guzman that was urgently sought? He was an American citizen, lost, confused, and in trouble in Mexico for almost three months.

Sunday, June 17, 2007

RIP: John Tracy (1924-2007)

Today's LA Times carries the obituary of John Tracy, the son of actor Spencer Tracy. In 1942, John's mother Louise Treadwell Tracy helped to found a clinic for deaf children and their families at USC, which became the John Tracy Clinic, a well-known Los Angeles resource for families seeking evaluation and intervention for their preschool-aged children with hearing impairments. They also have a program for deaf-blind preschoolers. Services from the John Tracy Clinic are free of charge, and oralist in orientation. (Read about one blogging mom's experiences at a recent JTC summer training here.)

John Tracy, who was deaf from birth, worked in the art department at Walt Disney as a young man, until he also began to lose his eyesight (he learned that his deafness was caused by Usher syndrome, which usually brings blindness later in life). In 2003, John Tracy was asked what message he'd want to pass along to deaf children today, and he replied: "I want to let the kids know they can live a full life. Sports, schools, hobbies, interests, dating, marriage, have a family, drive a car--all of it." Tracy is survived by his younger sister, his son, and three grandchildren.

Tuesday, June 12, 2007

Where is Pedro Guzman?

Nobody knows, including Pedro himself, at last word. While he was in jail for a misdemeanor trespassing violation, the 29-year-old Los Angeles-born man from Lancaster CA was mistakenly identified as a non-citizen, and turned over to Homeland Security for deportation in April. In mid-May, he called a relative, probably from Tijuana, but he wasn't sure. No word since then.

This week, his family filed suit against the LA County sheriff's department and the Department of Homeland Security. "My worst fear is that he is no longer living," explained Guzman's brother Michael. "He doesn't know how to read. He often can't remember his family phone number. He even gets lost if he gets off the main street in Lancaster." Michael Guzman confirmed that his brother attended special education classes before he dropped out of school; he speaks English and Spanish, but is unable to read in either language.

Pedro Guzman is an American citizen, a disabled man, abandoned by US government officials, alone in an unfamiliar place, after a misdemeanor trespassing violation. They could have looked up his birth certificate, or called his family, but nobody bothered. Now, nobody knows where he is. Or if he's even still alive.

At left above, a photo of Pedro Guzman, as shown at this local news website.

UPDATE (7 August): Pedro Guzman turned up alive in early August.

Tuesday, May 29, 2007

Rice Crackers and Sunshine

There was a great opinion piece in Sunday's LA Times. Titled "You know what makes me sick?" by Massachusetts writer Heather Abel, it details the years of misdiagnosis and mistreatment she experienced before getting the right diagnosis for her (celiac disease). She concludes with the bottom line:
I am relieved that treatment for celiac is as low-tech as rice crackers. But I wonder whether, if my disease did have a pharmaceutical remedy, doctors would have diagnosed it earlier. 'Here,' they would have said, 'free samples! Take four.'
Heather Abel's mother, Emily Abel, is credited as contributing to this essay. Emily Abel (a professor at UCLA) has been writing about the history of public and private health issues for years; her Hearts of Wisdom (Harvard UP 2000) is my favorite go-to text on family caregiving in US history, rich in detail and variety. Her latest book, Suffering in the Land of Sunshine (Rutgers UP 2006) is about tuberculosis as a public health issue, a cultural phenomenon, and a personal experience in early 20c. Los Angeles. (Haven't checked it out yet, but it's on my list.)

Monday, May 21, 2007

While Strolling through the Park One Day...

...In the Merry Merry Month of May...

Okay, I can't pretend it was a surprise, so the song ends there. But I did take this photo today in the park--at Aidan's Place, an accessible playground near UCLA. It's Heather Mills showing a prosthetic leg to a little girl named Sammy, who recently had an amputation, while Sammy's older sister looks on from a swing. Today is Sammy's eighth birthday. (What you can't see is the film crew from Entertainment Tonight, and the very long white limo that was waiting a few feet away.) We were there because Shane's Inspiration, an organization that builds accessible playgrounds here in Southern California, asked some of the park regulars to be there during Mills' visit, even though it was a Monday morning--going to school or playing in the park? Not a difficult call, really. So we knew there'd be some hoopla, and cake, but it was such an "only in LA" bizarro family outing, we couldn't resist. (I think the story will be on ET Tuesday night--I doubt we're actually in any of the footage, but if we are, I'm the mom in the black hat.)

Monday, April 16, 2007

"Listening through the Body" in Los Angeles, 9 June

This doesn't exactly sound like my kind of music, but I figure an innovatively-accessible live performance might be worth a plug anyway. Matsui has also done concerts supporting bone marrow donation and breast cancer awareness programs, especially those working among women of color. Edited down from a local press release, with links and image added:
Celebrated Pianist Keiko Matsui Performs with Asia America Symphony Orchestra
Saturday, June 9, 2007 - 8 p.m., Los Angeles, CA

Concert Marks U.S. Debut of Listening Technology for Deaf, Hard of Hearing

Renowned jazz pianist and composer Keiko Matsui (pictured at right), recognized as a Japanese national treasure, will perform with the Asia America Symphony Orchestra on Saturday, June 9 at 8 p.m. under the baton of Music Director and Conductor David Benoit. The concert will take place at the George and Sakaye Aratani Japan America Theatre at the Japanese American Cultural and Community Center, 244 S. San Pedro St. in the Little Tokyo area near downtown Los Angeles.

With generous funding from Pioneer Electronics (USA) Inc., the concert will feature the U.S. debut of Pioneer’s listening technology for the deaf and listening impaired. Pioneer has invited students from local universities and college campuses that are well-known for their deaf studies programs, as well as members of local advocacy groups, such as the OC Deaf Equal Access Foundation (OC DEAF) and the Greater Los Angeles Agency on Deafness (GLAD), to attend the concert free of charge to experience the music of Matsui and the Asia America Symphony Orchestra using this innovative technology.

Known as “Listening Through the Body” in Japan, Pioneer’s technology has been tested successfully and is used at leading Tokyo concert halls. It features a vibrating seat and speakers at ear level that allow users to feel the rhythms and vibrations of the musical performance. The system can be used with or without a hearing aid.

Japanese concertgoers who have used the Pioneer technology—including those who lost their hearing in adulthood—say it allows them to enjoy music. Employees at Pioneer’s headquarters in Tokyo, where concerts for the deaf and hard of hearing are held monthly, report that users of the listening system are often overcome with emotion when experiencing musical performances for the first time. For this reason, Pioneer’s dedicated and passionate sound engineers have developed and refined the listening system as a labor of love.

“As part of our ongoing commitment to the arts, and to innovations in audio technology, we are honored to partner with the Asia America Symphony Orchestra to sponsor this concert featuring Keiko Matsui,” said Tom Haga, President of Pioneer North America, Inc. and Board Member of the Asia America Symphony Association. “As we celebrate the performance of one of Japan’s best-known musical artists, we are honored that our listening technology will allow local students who are deaf and hearing impaired to enjoy her performance.”

Born in Tokyo and known for her smooth jazz compositions and piano artistry, Keiko Matsui has released more than twenty CDs with her newest, entitled Moyo (Heart and Soul), released in April 2007 by Shout Factory.

The June 9 concert will also feature works by Ravel, Copland and others. Tickets ($25-$75) are available at the symphony's website or by calling 310-377-8977. Pioneer Electronics (USA) Inc. is headquartered in Long Beach, CA.

Monday, April 09, 2007

Spring Break Field Report: The Torrance Treehouse

Torrance, California, comes in for no end of mockery. It's called "Borrance" by some, and music fans may remember director Spike Jonze's ironic "This is for Torrance!" shout-out from the podium at the MTV Music Awards a few years back. Torrance is where Quentin Tarantino grew up. A lot of high-school scenes in movies and television are filmed in Torrance, for some reason.

So, it's hardly a destination on par with Disneyland for the first day of Spring Break. But it's closer (it's the next city over), it's cheaper, and it's got "the first universally-accessible treehouse in a public space in California"--which is what we went to check out today. The treehouse was funded by the Annenberg Foundation, designed and constructed by the national non-profit Forever Young Treehouses in collaboration with the local non-profit Pediatric Therapy Network. It's in Charles H. Wilson Park, which also features a skatepark, tennis courts, batting cages, basketball courts, a baseball diamond, a hockey rink, a duckpond, picnic areas with grills, and a playground near a large open field with a hill. (The playground is not even a little bit accessible--it's built in sand, for one thing.) On Tuesdays and Saturdays, you'd also find a bustling farmers' market in the parking lot nearby. (Stop at the pupusa stand for lunch. I always do.)

The treehouse was made with environmental sensitivity in mind, according to the Annenberg website:

The treehouse decking is made of stamped, sustainably-harvested South American Ipe wood, and the oak posts were recovered and repurposed from fire-damaged forests in southern Oregon and trees damaged by grazing horses. The wooden branches in the arbor are recycled; they would normally have been chipped or thrown away in the logging process. The helical pier foundations are among the most environmentally sound methods for placing posts near living trees. The design and placement of the treehouse will enable the adjacent trees to grow unimpeded.
There are many photos of the 2500-square-foot treehouse online here (including the photo above).

The on-the-scene report: it's still in great condition after a year's use. Accessibility isn't just accomplished with the no-steps, no-ladders entry--there are also wide smooth walkways throughout, and sturdy railings. It's "just" a treehouse--no built-in toys or anything--but it's big, and most of the kids who play there seem to get a kick out of chasing each other around the structure. The wider "rooms" would be fun places for a group of children to sit together for a circle time. I liked that there were parts that were very shady, and parts that were sunny--nice variety there. It's not especially close to any parking, though the parking area for the park itself is large and otherwise accessible.

So, if you're feeling the need for a treehouse and you happen to be within a few miles of LAX, it seems Torrance is the place. (And I'm stunned to learn that Nay Aug Park, in the city of my birth, Scranton PA, is the process of getting an accessible treehouse from the same designers--hmm!)

Saturday, April 07, 2007

"Convalescence and California: The Civil War Comes West"

From a post today on H-California (wish I could make this lecture--but I'll be at a conference in San Francisco):

The Department of History at CSU Northridge will hold the annual W.P. Whitsett Lecture in California and Western history on Friday, April 20th at 8 p.m. in the Grand Salon of the University Student Union at CSU Northridge. Professor William Deverell, Director of the Huntington-USC Institute on California and the West and Professor of History at the University of Southern California, will lecture on "Convalescence and California: The Civil War Comes West".

The public is invited. The lecture will be followed by a reception. Since seating is limited, please call the Department of History at 818-677-3566 to make a reservation and to obtain information on parking.

Professor Deverell has a forthcoming study on The Redemptive West: Convalescence, Healing, and the Post-Civil War Nation. His Whitsett lecture will explore several themes from this study, most notably the extent to which soldiers and their families, their lives shattered by the war, looked to California for hope and rejuvenation, just as the nation looked to the far West for national redemption.
Postscript: While looking up links for this post, I came across an interesting photo collection online: they're images of the 75th reunion at Gettysburg in the summer 1938. Surviving Civil War veterans (and they must all have been in their 90s) from across the United States, Confederate and Union alike, took buses and trains to Gettysburg for a last gathering. The photos are moving, and a great many of them include men in wheelchairs, or with canes. (I've been in Gettysburg in July a couple times--it was really steamy, miserably hot and humid--I hope the tent city that was erected for the reunion was more comfortable for all those old veterans.)