Go check out the Patient-Consumer Parade #1, for some familiar faces from our our Disability Blogs Roundup (The Gimp Parade got the gold medal, but there's also Rolling Rains, and A Letter to My Children). This is planned as a weekly event, so submit your "best writing about being a medical patient or healthcare consumer." The criteria must be fairly broad: for example, I'm not really sure how Scott Rains' travelogue at Oregon's Lithia Park counts as a "patient" experience (using a wheelchair, by itself, doesn't give you permanent and constant patient status, right?), but it's always good to see him linked anyway. Thanks to Gimpy Mumpy for pointing this one out.And while I'm making referrals, the new BBC Ouch! Disability Podcast (#4) is available for download. Hear about Mat Fraser's encounter with the Queen (no kidding), an interview with performer Laurence Clark (pictured, left), and an on-air adoration ritual, with megaphone, at the Trafalgar Square statue of Alison Lapper Pregnant.
7 comments:
Hey! Thanks for linking to the Patient-Consumer Parade!!
To answer your question, you're absolutely correct; using a wheelchair doesn't necessarily make you a "patient". But it does make you a healthcare "consumer," just as using a car makes you an automobile consumer or riding a plane makes you an airline consumer.
The purpose of the Patient-Consumer Parade, then, is to bring people together who 1) think of themselves as purely "patients," 2) consider themselves healthcare "consumers," and 3) are someplace in between!
Cheers...
Thanks for the response, Trapier. I'm thinking that this would mean ANY blog entry would count for the carnival, though--bloggers who wear corrective lenses or takes any prescription meds are all "healthcare consumers" too, by this reasoning. As I said, I liked the carnival, but the Rains item seemed odd in context.
The Community Consortium has just completed a website and a traveling exhibit entitled "The Lives They Left Behind: Suitcases from a State Hospital Attic," based on research into the lives of people whose suitcases were found in an abandoned attic at Willard Psychiatric Center in New York State. The website and exhibit present the lives of the suitcase owners in all their richness and complexity, and examine the history of psychiatric institutions during the early-mid 20th century through the eyes of those who spent decades within their walls.
The website is at www.SuitcaseExhibit.org and information about the traveling exhibit is at http://www.exhibitionalliance.org/documents/48.doc
Thanks
Hi Ms. Richards,
Yes, you're right; any blogger who considers him or herself a medical patient and/or a healthcare consumer is welcome to submit a post to the parade. For that matter, anyone who merely wishes to write about issues pertaining to patients and/or consumers is welcome as well.
And if this has a democratizing, inviting, or inclusive effect on the parade then all the better! The Patient-Consumer believes in the power of seeing past "disability" and "disease" to the fact that we are all human beings who, at times, benefit from products and services designed to improve our health, whether they be corrective lenses, wheel chairs or even something so simple as toothpaste.
Regards,
Trapier
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